When Mothering and Nursing Intersect: Caring for a Child with Complex Medical Needs

Meet Amanda Chagnon, mom to three beautiful boys including her youngest, Alexios, who has medical complexities due to a condition called Tuberous Sclerosis Complex. Tuberous sclerosis complex (TSC) is a rare genetic disease that causes non-cancerous tumors or lesions to grow in the brain and other areas of the body, including the eyes, lung, heart, kidneys, and skin. Amanda shares how motherhood and her nursing background have intertwined, and the blessings and difficulties of homeschooling, especially when caring for a medically complex child. Honest about her struggles, other caregivers may find this conversation refreshing and learn from the ways she has found to manage her internal and external struggles.