Bobby Glen

Bobby Glen is a rare disease advocate and patient advocate who has been living with HNRNPH2, a rare genetic disorder that affects speech and motor skills. He has been involved in several clinical trials and has spoken publicly about his experiences. Glen has also worked with organizations to raise awareness about rare diseases and improve patient advocacy. In his free time, Glen enjoys spending time with his family and advocating for others affected by rare diseases. He is based in California, USA.