Kelley Coleman on Everything No One Tells You About Parenting a Disabled Child

Have you ever felt paralyzed by all the “stuff” involved in charting a path and advocating for your child? I’m sure I’m not the only one who’s put off calling the insurance company or establishing a relationship with a new health care provider because at the time it felt too overwhelming and daunting. But what if there was a resource that provided everything parents and caregivers need to know about navigating all the complex, but critical, aspects of raising a neurodivergent child? How great would that be?

I’ve got some good news for you! Today’s guest, Kelley Coleman, has created that resource — it’s her brand new book called Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports. Kelley’s book draws upon over a decade of experience, including her own experience parenting a child with multiple disabilities. It’s an honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver.

In this conversation, Kelley, a feature film development executive turned author and advocate for parent caregivers and individuals with disabilities, shares so many insights from her book, including the difference between being a parent and being a caregiver, strategies for navigating Insurance, working with medical teams, and other daunting systems, future care planning, and so much more.